Expert interviews: What have I learned so far?

Researching and learning more about Trochlear dysplasia | Photo by me

Reviewing my journey

Throughout my discovery journey, my knowledge of Trochlear dysplasia has improved having learned new things along the process. I've learned how many people it affects, what type of person it would mostly affect, when it's most likely to occur and the reasons why, as well as the general complexity of it overall. This journey has been useful as not only have I understood more about Trochlear dysplasia, but I have also had the chance to speak to various people, including Hayley and the medical experts, who could provide me with the information I was looking for that the internet could not precisely give me. Although, there are still areas that are left unanswered and still a lot of research to be done.

It was nice to meet someone for the first time who also has the condition - being able to discuss and share our experiences and relate on such a level was one of the best moments of my journey. As rare as the condition is, it is also just as rare to meet someone with Trochlear dysplasia who has suffered just as much as you have during the process.

Moving forward, having now known that there are various studies that I have access to through Dr. Lars Blond, (conducted and researched himself being a member of the European Patellofemoral Study Group) I will be reading more about it. I have also briefly mentioned to Dr. Lars Blond that I do wish to have surgery in the future, and being the inventor of the trochleoplasty himself, the most common surgery for someone with Trochlear dysplasia to have, I had received firsthand advice and what he recommends would be the best thing for me to do.

To conclude, here is a round-up of the information I've learned about Trochlear dysplasia whilst speaking to medical experts. This video will answer the following questions:

1. What is Trochlear dysplasia?

2. What are the symptoms?

3. Is it hereditary and when is it most likely to occur?

4. How many people have it and who does it mostly affect?

5. What is the ratio between males and females?

6. Why is it not commonly known?

7. What can one with Trochlear dysplasia do to help themselves/what are the solutions?